This is my schedule usually.
8am: first therapy
1:30pm: physical therapy
I have a ct scan Monday at noon. I also have my gtube and bronc at 7:30am on Tuesday, so that will be fun.
At physical therapy we went outside and did a few different exercises.
Brianna and I were alone all day, which was actually nice since it was just us. We watched tlc which had on four weddings and say yes to the dress. My aunt and uncle visited, which was nice.
Someone came in from music therapy and we played ukulele. It was sort of good to have something different to do.
We went on a long walk for around 45 minutes at 11. We took a couple laps around the lobby and went to a lobby.
Today my sister had a bronc. They said it would be at 12, but then it was moved to 2m30. They put her on call so it could possibly be moved up sooner and she ended up going down at 1:30, but didn’t go back til 2:30.
Right now I’m updating my computer which takes awhile. I have treatments at 4.
My mom went and talked to another mom with a daughter who was going to get a gtube.
When Bri gets back I want to play jenga with her. I want to go to Michaels this weekend to get some fabric to make a tie blanket. Brianna made it one time we were admitted. It’s nice because it’s so thick and you can choose which fabric you want. For Brianna’s they’re both kind of fleece and one side is really soft.
I got pfts done. They’re a bit better which is good. One is 82 the other is 101.
It was really foggy today.
That’s all for now,
Today we were actually doing stuff.
I woke up at 7:30 and did therapy at 8. I heard we had pfts and ekgs. I also had to take a shower. I had the ekg at 10:30 for a prolonged qtc which can because by the celexa. It’s a longer resting beat of the heart and we’ve had it a little bit in the past so every time we get admitted we have to get one to make sure it’s not to long.
Of course it wouldn’t be a hospital stay without watching the office and playing the sims. I ate around 1 which is a bit late, and we had physical therapy at 1:30. We did this thing where we throw a ball that has a bunch of different exercises on it. When you catch it you do the exercise that it lands on. It made it a little more interesting.
We used these 4 wheeled, almost like a skateboard that we sat on and used our legs to move us down our hallway. Then one of us sat on it and the other pulled one another while holding on a jump rope.
My pfts number for my small airways was 84, and my lsat one was 114, which means it’s 29 down if I did the math right. My large airways were 79. So there not great, but they could be worse.
I’m hooked up to Toby right now, watching the office. I’m about to do therapy and I have a headache.
That’s all for now,
I used prismacolor colored pencils.
I got the picc today. I woke up, they came in around 8 and I had to roll down my iv because I was on fluids. When I got downtown there I didn’t wait to long for everything to happen. They asked me questions, I changed into a gown, got my vitals taken and then someone gave me some relaxation stuff before rolling me back to the or. For most of the day I was groggy.
I talked to phycology about my increased anxiety. I went and walked around a bit for pt.
I officially have no ivs. Yay. Hopefully I get better sleep tonight since I won’t be hooked up to fluids and don’t have an iv. Last night I got like 2 hours of sleep. I also had to get my blood drawn at 10:30 and later at night for tony levels. The person who drew it was really good, which is always good. I’m glad it’s The Weeknd so I get to chill.
The doctor came in and said we would be gets bronchioles scopes either Tuesday or Wednesday and that I would most likely be able to get my gtube at the same time. I’m really nervous to get it and know I’ll be freaking out which is always great.
That’s all for now,
Vanessa, brianna and I had a picnic the other night and watched the sun set.
This one looks like the us flag.
This is at my friend vanessass barn.
We went to a museum called musee la orangerie. It had a lot of monet artwork and information.
This is by monet. I didnt take any other pictures, and some things I couldn’t take pictures of. Afterwards we went and ate at a cafe. We took the metro back. I took some random pictures of brianna and I sitting in tgis spoon chairs.
I dont feel the beat and feel worse today, so we went back to the apartment. I plan on taking a nap or something.
These are the pictures from last night. The Eiffel tower had projections on it for Bastille day. They were practicing I’m guessing. Then we saw the tower sparkle. We bought a small eiffle tower that lights up also.
Tommorow is the day we go home. Yayy I’m ready to see my dog and sleep in my own bed.
Thats all for now,