My gtube set up

Since I recently just got a gtube I have added many things to my pharmacy of a nightstand. Today my mom took the stitches out so it hurts a little more today. I always had a decent amount of health stuff on my nightstand and so I have an updated collection. I have a box…

Hospital Diaries #11

Today was a little more eventful than yesterday. I took a shower. My respiratory therapist wasn’t the best and was an hour and a half late for my 8am treatment. She ended up showing up around 9:30, which was a bit ridiculous. I am most likely still getting discharged on Wednesday so I’m happy about…

Hospital Diaries #7-8

Day 7 This is my schedule usually. 6am:Thyroid medicine 8am: first therapy 10ish:rounds 12pm:second therapy 1:30pm: physical therapy 4pm:third therapy 8pm:fourth therapy I have a ct scan Monday at noon. I also have my gtube and bronc at 7:30am on Tuesday, so that will be fun. At physical therapy we went outside and did a…

Hospital Diaries #6

I wasn’t dong the greatest in the morning. I was depressed and just down. I think it was all just hitting me at once. I spent an hour watching vines and doing therapy and stuff and once I got caribe and hung out with Brianna for a little bit I started to feel better. I…

How I told people about my CF

Throughout my life I’ve had to deal with explaining my disease. When I was younger, I think it was more difficult to explain it. I had a decent understanding as to what it was, but it was harder for other kids to understand. It is definitely hard to grow up having a responsibility of doing…

Hospital Diaries #5

Today was another chill day. I woke up around 7:30. I did therapy at 8 and ate some breakfast after. I’m planning on doing this challenge called draw this in your own style. It basically is an art challenge where you take someones drawing under the hashtag draw this in your own style and draw…

Hospital Diaries #3

I got the picc today. I woke up, they came in around 8 and I had to roll down my iv because I was on fluids. When I got downtown there I didn’t wait to long for everything to happen. They asked me questions, I changed into a gown, got my vitals taken and then…

Hospital Diaries #2

So I did not get a picc today. I woke up did therapy, and my sister had already changed into a gown when we were told that we wouldn’t be getting them today. So rounds. My X-rays showed for my stomach that I am indeed, backed up. If you don’t know what that means, it…

Hospital Diaries #1

So today I got admitted. I got the call the room was ready at around 3. Once I got to the hospital they asked questions, I unpacked, all that Jazz. I’m in a respiratory isolation room, which looks a lot different than other rooms. After waiting a bit and picking what to,e I’m going to…

Crap Lungs and Sleepless Nights

Another sleepless night to add to the book. Well technically it’s not a sleepless night it’s just a bit to late for my liking, then again when am I not up this late. So I’m laying in my bed, wishing my stupid internet would work. I’m currently using my sisters phone as a hotspot. It’s…