So a lots been going on the last day or so. Yesterday I had thrown up around 6 times. Dry heaving, that fun stuff. I basil you slept all day yesterday. My heart rate was steady around 125 and my temperature is 100.9.
I’m still losing weight and so I feel weak. I did do tube feeds, but used a boost breeze instead of my peptamen. I threw up this morning and continued to dry heave afterward. I got an ultrasound and nothing showed up. I also got tested for celiac and ibs, both negative.
My blood sugar got tested and was normal also. There testing me for c dif and May do a gastric emptying test, which I’m hoping they do. It tests for Gastroparesis.
I’ve been hooked up to I’ve fluids since I haven’t been taking anything in.
I’m planning on doing a marvel movie marathon. Yay.
I don’t really have anything else to say. Thanks for all the support.
That’s all for now,
So many posts… the time I’m uploading it’s more than 500 ports, but you get the idea. I can’t believe I’ve uploaded 500+ posts, I wonder how long I’ve spent on this blog..? 😂
So as you know I got admitted last night from my picc being blocked. So they figured out I needed to get a new line. I was npo, which meant I couldn’t eat or drink anything.
They were thinking about a few ideas for a new picc because it’s thanksgiving and there are not a lot of people in surgery.
They told us I could do it bedside, have a perphial iv at home, or do what I usually do and get sedated. I did not want to do it bedside because my veins would close up from being so nervous and anxious.
They ended up being able to fit my procedure right after an emergency surgery, so I could be sedated. We went down at around 12 and I got into surgery at 1:30. They gave me relaxing medicine before going back and then did all the stuff. I got discharged after everything.
Anyways happy thanksgiving,
Around 3 when I had my antibiotics my mom couldn’t flush it. We tried trouble shooting which is when you move your arm above your head, cough, etc. it didn’t work so she called my hospital and we tried a couple other things which didn’t work.
The nurse told us to go to the er because I have a blood clot. At the er they tried tpa to get the blood clot lose or go away. They tried two doses of that and it didn’t work.
I got an iv because I needed antibiotics. They got it on the second poke.
Right now I just got an update. I am being admitted since I need antibiotics and I’m going to need to get a new picc line. So fun times. Hopefully I’ll get a picc tomorrow, but their not sure since it’s thanksgiving.
Anyways that’s all for now,
So I’m driving home from the hospital. Just in time for rush hour yay. The doctors did pfts and they were better. The doctors decide to discharge me. They put me on a different antibiotic as well as keeping me on prednisone. He was worried about admitting me since antibitoics are hard on your kidneys. He said if I end up coming back to the er then well deal with it. He said its better to rest in your own bed then keeping you here. So it might not be a suprise if I end up back in the er.
I got iv out and all that jazz. I got like 3 hours of sleep, so yay.
That’s all for now,
So around 4 I started having breathing problems. Just the usual out of breath, tightness . It continued to progress throughout the night. It was hard to talk, my nostrils were flaring a bit, I was pale, around my eyes were red, and I just felt like crap. I tried albuterol a couple times with no success. My mom had called the hospital today, saying our previous antibiotic wasn’t helping so now I’m on prednisone and the other antibiotic. Along with doing therapy 4 times a day.
At around 9 we decided to go to the er. I’ve been here once before so it wasn’t exactly my first rodeo. When we got there I ms were some normal questions. Then I was pulled back into a room. A nurse came in and talked about some doctors coming in. I talked to a few doctors and a couple nurses. Went through all my meds several times. Change into an uncomfortable gown and went down for X-rays. Like any other X-ray I’ve had, nothing showed any abnormalities. They decide I was going to be admitted and I got an iv in. They drew some blood through it. Then I waited for tech to transport me when I had bed.
Now that your caught up to speed, I’m laying in the uncomfortable bed with uncomfortable pillows because I didn’t pack a lot, nor did I bring my own pillow. Tomorrow is when we’re going to decide everything. I have pfts in the morning and then we’ll see if I’m going to stay or not. I had pfts done three days ago at clinic, but since my breathing has been getting worse they want to check them. Honestly I hope I stay to be put on iv antibiotics. I know prednisone doesn’t help and everything else doesn’t beside iv meds. It would be better to be admitted now then in a couple weeks, plus then I would hopefully be able to have a picc in before the weekend. Even with the added therapies I know the oral meds won’t help. I’ve been through this before and know what ends up happening.
Anyways that’s all for now, I’ll update tomorrow,