Happy Father’s Day dad! Love you!
Happy Father’s Day dad! Love you!
Friday I had yet another appointment with my doctor. Pfts then GI appointment.
The same as last time. I talked to my doctor and I’m going off the previous oral antibiotic, getting put on inhaled tobymyacine antibiotics. I just finished a 5 day course of prednisone as well.
When my mom had been talking to her she asked if any of us thought we needed to be admitted.
If this doesn’t work I’ll probably go into the hospital. For the time being, at least for the next week or two I’m trying not to get admitted because of finals and such.
Though it will be nice to be in the hospital when I don’t have to worry about school.
These appointments always leave me at a loss and frustrated. Confused definitely. Basically as a summary, I’m going to be getting a gastric emptying test done, trying to maintain/ gain weight, and such. We were talking about trying another medication I’ve been on but increasing the dosage. We’re holding that off for a bit.
Anyways that’s all for now,
The next two weeks I’m finishing up the school year. Finals already in the process and to many projects to count.
I’m stopping quotes. Maybe I’ll continue in the future, but it was more used as a filler. I can’t upload daily. In the summer I’m going to be trying to do more art, get my blog monetized, drivers ed, jobs, etc.
Right now I’m tryin to focus on one thing at a time, but it’s difficult. A lung infection in tow really adds to the overall pile of responsibility. The antibiotic I’m on now is causing me frequent dizziness, which is difficult to deal with. My weight is declining again and just ughhh.
I’m supposed to be doing 3 best treatments, 3 hypertonic saline, 2 doses of mirialx through my gtube, bunch of medications, and my memories going to crap with all the things I have to do.
The past week I’ve been trying to figure out my drawing tablet. It’s a kamvas gt-191 by huion. Recently my dad and I mounted it to the wall where my desk is. I couldn’t get the actual drawing part of it to work, just using it as a monitor to watch Netflix when I draw. Today I finally figured it out.
There is three cords that connect to the tablet. Two go to my computer, and the one other is just the power cord. The past week, I’ve only had two cords. Finally realizing this once I went through the handbook, I instantly fixed the problem.
I’m planning on starting doing comics. Little short stories or quick memories to add and adjust to digital art. My sister, @art&roses gave me the idea the other day.
As for the time being, I’m going to be busy. Example, I didn’t even get to do any art today which is saying something.
Anyways, that’s all for now,
For those of you who are new to my blog, I have a genetic disease called cystic fibrosis(CF). May just so happens to be CF awareness month so I’m going to make a post about it.
Last year I did a post everyday, but with a lack of ideas for posts over the course of 31 days, I won’t be doing that.
I’m going to be sharing my journey with CF.
I was diagnosed at 3 months, along with my twin sister, Brianna. She had a blockage which led us to be tested for cf using a sweat test.
They implemented in 2010 that every newborn is to be tested. Well I wasn’t born in 2010, so it was a good thing my sister had a blockage or else we wouldn’t have been diagnosed so young.
So I grew up doing vest treatments twice a day, taking enzymes before every meal, along with nebulizers and other medication. My parents have said that there was a couple close calls of us being admitted when we were younger, but that held out until I was the ripe age of 12.
My sister was admitted through the ER in the beginning of 2017. That was the first time either of us had been admitted. She was in for 1 week, and got 2 weeks at home with antibiotics through a picc line.
It was only half through the year when I started getting admitted. It soon became a routine. Every three months, picc, one to two weeks at a time.
I still get admitted every 2-3 months. Right now i’m dealing with nausea and weight loss issues. I got a g-tube last year, but i’m not able to use it because of the nausea.
Thats all for now, for more information about CF look at cff.org.