Tried to do school today. Worked a little but eventually I gave up as people kept coming in and out of my room and I was getting super anxious and stressed.
Child life left this on my door:
Which is truly amazing.
Tomorrow I have a CT scan at 1, and Thursday I have my bronc. There’s not a time yet though. I had pfts today, they were the same as last time. My numbers are actually really good, I think my FEV1 was at 90, but despite that I’m still having issues breathing.
I keep getting crappy sleep. Having vitals every six hours makes my night look like this:
5:30-6am- t-com check and another set of vitals
8- Therapy #1
So overall, not good. The t-com is checking my carbon dioxide levels. I have hyperventilation when I sleep and I’m supposed to wear a bipap but I can’t sleep with it on. I’ve tried several masks, had two sleep studies, attempted actually sleeping with it on, but no luck.
The normal level for it is low 40s. The past few days mine have been generally around 45-48 but today it was 50.
My morning afternoon schedule is like this, generally:
Physical therapy(sometimes morning, sometimes early afternoon)
4pm- therapy #3
8pm- therapy #4
Anyways that’s all for now,