For those of you who are new to my blog, I have a genetic disease called cystic fibrosis(CF). May just so happens to be CF awareness month so I’m going to make a post about it.
Last year I did a post everyday, but with a lack of ideas for posts over the course of 31 days, I won’t be doing that.
I’m going to be sharing my journey with CF.
I was diagnosed at 3 months, along with my twin sister, Brianna. She had a blockage which led us to be tested for cf using a sweat test.
They implemented in 2010 that every newborn is to be tested. Well I wasn’t born in 2010, so it was a good thing my sister had a blockage or else we wouldn’t have been diagnosed so young.
So I grew up doing vest treatments twice a day, taking enzymes before every meal, along with nebulizers and other medication. My parents have said that there was a couple close calls of us being admitted when we were younger, but that held out until I was the ripe age of 12.
My sister was admitted through the ER in the beginning of 2017. That was the first time either of us had been admitted. She was in for 1 week, and got 2 weeks at home with antibiotics through a picc line.
It was only half through the year when I started getting admitted. It soon became a routine. Every three months, picc, one to two weeks at a time.
I still get admitted every 2-3 months. Right now i’m dealing with nausea and weight loss issues. I got a g-tube last year, but i’m not able to use it because of the nausea.
Thats all for now, for more information about CF look at cff.org.