Spoon Theory

The spoon theory applies to anyone with a chronic illness.

Spoons= Energy

The theory is, say you start with 12 spoons for a day. If you use more than those 12 spoons it takes our spoons for the next day.

The spoon theory is an easy way to show people how it is like to live with a chronic illness and help to understand and spread awarness about the issue.

I am a spoonie. I have a chronic illness called cystic fibrosis which I will have the rest of my life.

Some other Chronic illnesses are anxiety, depression, fibromyalgia, etc.

“The difference between being sick and being healthy is having to make choices the rest of the world doesn’t have to.”

-Christine Miserandino, spoon theory creator.

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Being In school with Cystic Fibrosis-School Stories

My journey with school is not over yet, as sad as that is. I’m only just moving onto high school, but I’ve had my fair share of school experiences. Especially when you have cf, it gets a little more interesting.

When my sister and I were in elementary school, we wold walk down to the office and they would give us our enzymes before we went down for lunch. Since we didn’t have problems til middle school, we didn’t need to worry about carrying around our inhalers on us. So, each day we would leave 5 minutes early before we went to lunch to go down to the office. It would be annoying because people would ask  why and we didn’t really know what to tell them.

It wasn’t until middle school when it changed. Since we had bells we didn’t need to leave early and we would go to the office and didn’t need to ask them for our medicine. We would have our enzymes in our lunch boxes. We had the option of taking them in the lunchroom, but we decided against it since people would ask questions. We would have our inhalers in our backpacks.

When I started getting sick, I was on home bound for half the year. Even when I got back I left my books and binders for each class in the rooms, so I didn’t have to go back to my locker in between classes since my classes were all over the school and my locker was on the opposite side of the school of those classes. It would cause me to have breathing issues and be out of breathe, so i liked that to not be an issue.

I am going to be home schooled next year, probably all throughout high school due to frequent sick days and getting hospitalized every few months.

Paris

So i am going to Paris on the 2nd. I will arrive the 3rd. I’ll be there for around 2 weeks so I’ll probably upload pictures either weekly or daily, but I don’t think I’ll be able to because I’m not bringing my computer so it will prob Amy be pictures from my phone and iPad that you’ll see.

We’re also gong to be going to London since it’s only a two hour train ride. I’ll probably be uploading posts about what I did and a couple pictures, but you won’t see a lot of the pictures until I come back.

Crazy Substitute Teachers-School Stories

We’ve all have our fair share of substitutes to know which ones we like and dislike. There’s the one who will let us do anything, the mean one, the one who’s way to strict, and the randomness goes on.

I once had this sub in 5th grade. At the time we had a student teacher. In our class we had a cabinet full of snacks for people who couldn’t bring them or afford them. This sub, which we only had once, ate all of the. I get maybe one or even two, but the WHOLE CABINET is a little ridiculous. He then proceeded to leave us, a bunch of 5th graders with a student teacher and go to the store. Keep in mind we shouldn’t be left alone with a student teacher because their in training. And two, he didn’t even tell us he was going to leave. When he came back he had a bag of pretzels and bills. He sat at the desk and payed his bills. Like who does that. Oh, but it doesn’t end there.

We had a field day, which we went out near the playground and played a bunch of games. We walked down towards the front of the school to go outside because the sub for some reason didn’t come with us and we had no idea where to go. We got to the front of the school and didn’t know what to do. We walked towards the field where our sub apparently was and just causally asked, “oh, there you are.” Keep in mind when we left the room he was still sitting there eating his pretzels and not paying attention. This is the craziest sub I’ve ever had and we never saw him again.

This next one happend this year. So since me and Brianna have had a rough year of health we were in the same history class together so it was more practical. We were still on homebound and we weren’t really in the class, we would just go to that hour of it. During this time there was a lot of subs.

Now subs usually don’t mention anything, but this one was a little nosy. She took attendance and then asked us why we were in this class. Usually we just said something like oh we moved classes, or this isn’t really our class on our schedule but we go to this one, and the subs would just leave it at that. This one didn’t. She asked us the same thing why are you in this class, and I responded with well we’re not actually in this class we’re just here temporarily. She asked us why and I said because we’re on homebound and stuff and she asked me why 3 more times and I said the same thing. It always annoys me when subs are like this because it’s none of their business and the school or teacher should have notified them or written something down so we wouldn’t have to deal with that. Now I know to just say it’s personal and that it’s none of the business why I’m in which class.