So I have around 150+ markers and I am currently trying to come up with shelving for them so I don’t have to just have them in those bags that they come in.
So today I had pfts or pulmonary function test. It measures lung capacity, air flows through airways and other stuff. You have to blow in through this thing that measures it, and breathe in a certain pattern that goes with what your measuring. I’ll insert a picture at the end end of this post showing what it looks like.
What my doctor looks at is my numbers for FEV1 and the 25%-75%. It is the measurement of airflow through the big and small airways.
This is what a pft looks like. Though some may differ, this is what mine would look like, except they usually don’t close the door unless we’re doing a different kind of pft that I only get once and a while.
My FEV1 was 75 and my 25%-75% was 69. This is lower than my previous pft, but not by much. These are around the numbers mine have been for the past few months and is lower than usual. Before I had problems it would be in the high 90s, sometimes lower 90s high 80s, but not usually how it is right now.
I get pfts every time I go to clinic so I’m very experienced.
You know you have cf when..
When you get winded changing your clothes
Having to fill up your pill container every week
Having to clean nebulizers every 5 plus days or so
Having breathing problems more times than actually feeling like your breathing normally
When you have free time, you spend half that time doing something related to your disease
Not being able to fall asleep because you feel crappy, but having to wake up earlier to do treatments
Being fatigued/tired all the time, but not being able to sleep
You have to bring pills with you everywhere
Having no appetite, but having to HAVE to eat more to gain weight
Always having to take pills before you eat
Always feeling crappy
Going out and doing something, but always feeling sick afterward
Constantly having to explain why your sick
So I recently went on vacation and on the plane and in the airport I had to wear a mask.Struggles of wearing a mask.
So every time I go to cf clinic or most doctor appointments I have to wear a mask. I’m flying back from a vacation and I have to wear masks in the airports. To say the least it is annoying, especially when your already having breathing problems.
I hate wearing a mask. It makes it feel like I can’t breathe some times.
What I don’t understand when people stare at me. Like yes I am wearing a mask what’s the big deal. Even when I was admitted in the hospital the first time(the second time I couldn’t go out of my room) people look at me. At clinic appointments people will still look at me. What I don’t understand is what do they expect, your in a hospital, someone’s going to be wearing a mask.
Like yes I understand quick glances but this one time I was in the lobby of the hospital going out to eat and there were these girls probably around my age that just kept staring at me and my sister as we walked by. We had both been admitted, and we’re both wearing masks and picc line covers, so I understand a quick glance or to. But no they were just straight out staring at us.
It annoys me because it just makes the whole experience worse. I already don’t want to be wearing a mask but people staring makes it worse. They make it seem like some unusual thing.
There’s not a lot of people who wear masks in the hospital, but seriously what do people except it’s a hospital. Now in an airport might be a little different, but yo still shouldn’t stare.
I guess it’s just another thing I have to deal with, with Cf.
Hey so I have been having a lack if posts a nd that is because I’m on vacation. Well I’m,flying back today so ill probably have am upload tomorrow if Friday. I am currently bored and don’t know what to talk about. Probably end up talking about cf.
So cf. I got nothing. Um ok hacks. So if youve ever had a picc line you know using press, and seel buy a shower cover for in the shower off if amazon.
Having a hard time keeping all of your vest and nebulizers organized and in the same space, buy a cart from Ikea. I have one that has three shelfs, the top,one has my vest, the second shelf,holds my nebulizer pump, and the third one holds the vest I put on. I also have two small,buckets attatched to put my nebulizer in.
When admitted into the hospital bring your own blanket and pillow.
If you,need something heated up, ask your nurse or the host to heat it up for you.
If you have a fluid goal bring your own water bottle to keep track if fluids easier.
Bring face wipes or shower wipes to,clean yourself with,instead if showering.
So i am typing this on my phone,so if there is any errors I missed that is why.
I am bored in social studies. I just took a unit test and she lets us go on our phones when were done. I have 25 minutes left to class so i thought why not type something for my blog. So here I am.
The thing is I have nothing to talk about so I’ll just type as I think of random stuff to talk about.
Hmmm… Im going to talk sbout ny plans for may. May is cystic fibrosis awareness month so I will be posting stuff on CF everyday. Ill probably have repeats of previous posts though. Like for the first day I’m going to give a long summary about the basics of cf. Like with genes and how it affects my body and stuff. I might include some theory’s and myths in there.
Im going to be on a plane tomorrow so I’ll probably write and come up with a post idea for every single day of may. Its really early to start thinking of that (3 months early to be exact) but who cares, when else am I going to have a couple hours to come up with 30 different post ideas all on CF. If you have any ideas for some ideas for cf posts please gladly comment because I know it will be harder than I think it will.
Ok now I’m just blabbering about future plans. I might start typing up posts in advance because I probably wont have enough time to write a post every single day.
Im still bored and I have 12 minutes of class left. I got nothing else to say for now. Ohh it only took me 13 minutes to write this all. Yay new record. Ill just state some random thoughts I guess.
I want to not be in school. I wonder what I’m going to be doing in math.
What is my dog doing?
Why am I so bored?
😀😁😂🤣😃😄😅😆😉😊😋😎🤗🙂☺😇🤠🤡🤓😪🤤😝😷🤒🤕🤢🤧☹😬😱😵Who comes up with emojis?
Im so bored. Okay I think this is a long enough post for today.bye
I really need to come up with something to end my posts with saying bye is so boring. For right now I’ll just say how long it took me to type this. It took me 19 minutes. Ok nnow bye.
I drew my friends horse. Don’t got much else to say.