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Marker Collection

So I have around 150+ markers and I am currently trying to come up with shelving for them so I don’t have to just have them in those bags that they come in.

Pfts(pulmonary function test)

So today I had pfts or pulmonary function test. It measures lung capacity, air flows through airways and other stuff. You have to blow in through this thing that measures it, and breathe in a certain pattern that goes with what your measuring. I’ll insert a picture at the end end of this post showing what it looks like.

What my doctor looks at is my numbers for FEV1 and the 25%-75%. It is the measurement of airflow through the big and small airways.

This is what a pft looks like. Though some may differ, this is what mine would look like, except they usually don’t close the door unless we’re doing a different kind of pft that I only get once and a while.

My FEV1 was 75 and my 25%-75% was 69. This is lower than my previous pft, but not by much. These are around the numbers mine have been for the past few months and is lower than usual. Before I had problems it would be in the high 90s, sometimes lower 90s high 80s, but not usually how it is right now.

I get pfts every time I go to clinic so I’m very experienced.

You know you have CF when…

You know you have cf when..

When you get winded changing your clothes

Having to fill up your pill container every week

Having to clean nebulizers every 5 plus days or so

Having breathing problems more times than actually feeling like your breathing normally

When you have free time, you spend half that time doing something related to your disease

Not being able to fall asleep because you feel crappy, but having to wake up earlier to do treatments

Being fatigued/tired all the time, but not being able to sleep

You have to bring pills with you everywhere

Having no appetite, but having to HAVE to eat more to gain weight

Always having to take pills before you eat

Always feeling crappy

Going out and doing something, but always feeling sick afterward

Constantly having to explain why your sick

Struggles of Wearing a mask

So I recently went on vacation and on the plane and in the airport I had to wear a mask.Struggles of wearing a mask.

So every time I go to cf clinic or most doctor appointments I have to wear a mask. I’m flying back from a vacation and I have to wear masks in the airports. To say the least it is annoying, especially when your already having breathing problems.

I hate wearing a mask. It makes it feel like I can’t breathe some times.

What I don’t understand when people stare at me. Like yes I am wearing a mask what’s the big deal. Even when I was admitted in the hospital the first time(the second time I couldn’t go out of my room) people look at me. At clinic appointments people will still look at me. What I don’t understand is what do they expect, your in a hospital, someone’s going to be wearing a mask.

Like yes I understand quick glances but this one time I was in the lobby of the hospital going out to eat and there were these girls probably around my age that just kept staring at me and my sister as we walked by. We had both been admitted, and we’re both wearing masks and picc line covers, so I understand a quick glance or to. But no they were just straight out staring at us.

It annoys me because it just makes the whole experience worse. I already don’t want to be wearing a mask but people staring makes it worse. They make it seem like some unusual thing.

There’s not a lot of people who wear masks in the hospital, but seriously what do people except it’s a hospital. Now in an airport might be a little different, but yo still shouldn’t stare.

I guess it’s just another thing I have to deal with, with Cf.