Daily photography #5

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Picc Line/ Port

When i’m admitted I get a picc in my arm since I do iv antibiotics for a couple weeks. I do get put on anesthesia for it, but you don’t have to. I just prefer to be asleep. During the procedure they use a ultrasound to find a good vain the make a small incision in that spot. They place a tube into the vain all the way to your chest. Then, they put sutchers which are like stitches on either side of the picc line.If you are awake for the procedure you do not get sutchers. They put a small bandage over it and then its all done. Every week you have to get the dressing changed, which is the bandage covering the picc over it to keep it from getting infected. You can shower with a picc, but you have to cover it. When I got mine for the first time i used press and seal and wrapped it around the area and secured it with tape. It works, but isn’t the most comfortable. I buy shower covers from amazon and use those instead. Even though you can shower with them, you can not submerge it underwater, so no swimming sadly.When you are done with the course of antibiotics you get it pulled out.

A port is somewhat similar to a picc. It can do the same things.  A port is put in the chest under the skin. You can be put under anesthetics if you like, but a lot of people don’t. I would prefer to go under personally.n If you do wish to be awake they numb the area and give you medication to make you loopy. Like light sedation. Some people fall asleep with it though. I do not have a port. You can access it with a needle. When it is accessed you have to cover it with a plastic thing. It is a more long term option.

 

 

Picc Line/ Port

When i’m admitted I get a picc in my arm since I do iv antibiotics for a couple weeks. I do get put on anesthesia for it, but you don’t have to. I just prefer to be asleep. During the procedure they use a ultrasound to find a good vain the make a small incision in that spot. They place a tube into the vain all the way to your chest. Then, they put sutchers which are like stitches on either side of the picc line.If you are awake for the procedure you do not get sutchers. They put a small bandage over it and then its all done. Every week you have to get the dressing changed, which is the bandage covering the picc over it to keep it from getting infected. You can shower with a picc, but you have to cover it. When I got mine for the first time i used press and seal and wrapped it around the area and secured it with tape. It works, but isn’t the most comfortable. I buy shower covers from amazon and use those instead. Even though you can shower with them, you can not submerge it underwater, so no swimming sadly.When you are done with the course of antibiotics you get it pulled out.

A port is somewhat similar to a picc. It can do the same things.  A port is put in the chest under the skin. You can be put under anesthetics if you like, but a lot of people don’t. I would prefer to go under personally.n If you do wish to be awake they numb the area and give you medication to make you loopy. Like light sedation. Some people fall asleep with it though. I do not have a port. You can access it with a needle. When it is accessed you have to cover it with a plastic thing. It is a more long term option.

 

Weight problems

So this is similar to my last post about feeding tubes.

I have weight issues because of cf. My body does not produce a lot of enzymes which leads to indigestion and bowel issues. I have to take man made enzymes before I eat so I can digest the food properly. I still get some stomach issues, but it helps a lot.

I am underweight and in the last year have not gained any weight. I’ve been up and down, but the last time I was at the doctors I weighed the same as I did last July, so I’ve been considering a gtube.

This is a common problem in people with cf and consists the rest of their lives. A lot of people end up getting feeding tubes to help them gain weight.

Feeding tube awareness

So no I don’t have a feeding tube of any kind, but my sister does so I know more than most people, plus with my on going weight issues I have to consider if it’s a good idea for me to get a feeding tube.

There are multiple kind of feeding tube. There’s an nj tube which is inserted into the nose down to the stomach area.

There is a g tube, and a g-gay-tube which are both buttons on the abdomen stomach area that can open and be hooked up to tubes for feeding. The difference is that they are in different parts of the stomach. Both are put in surgically, so you are asleep during the procedure.

Depending on what disease you have, you might have to be on constant feeds, or just nightly feeds. It also might determine what kind of feeding tube you have.

My sister has a gtube, and has nightly feeds. She to has cf and it has helped her a lot and has helped her gain weight.

Traveling with a chronic illness

So ya we all have the annoyances of packing. It’s an annoying process and you end up forgetting at least one thing every time. Now with an illness it gets like that too. There is many things I have to pack and it gets quite bothersome.

I have to pack a vest, inhalers, medications, nebulizers, and so on. When I travel on a plane I have to pack the vest as carryon since people aren’t the nicest with luggage and couldn’t care about what’s inside it.

You have a vase in there? We don’t care. *chucks it at the conveyer belt*

Oh you have an ancient million dollar ceramic thing? Let me just “gently” toss it on the plane.

Ya get the point. So it’s an extra bag to have to pack and bring with you on the plane. You also have to make sure you pack enough medication for where your going because guess what, if you forget a important medicine, there ain’t nothing you can do about it because your many states away.

I have to wear a mask on the plane and in the airport, which is annoying enough when your at the hospital. People always look at you or something and I’m like yes it’s a mask and it’s not going anywhere. It’s not like you staring at it is going to make it disappear.

So ya it is a struggle.